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Improving Equitable Access to Mandated Fertility Preservation Coverage in California: A Symposium

Friday, January 10, 2025 | 8 am to 5 pm PT

In-Person (Presentations and Small Group Discussions): 9 AM - 5 PM PT

Location: UCSD Social Sciences Public Engagement Building, Sixth College, Room PEB 721

Online via Zoom (Presentations Only): 

  • 9 AM - 11 AM PT (Patient Focus) 
  • 1 PM - 2 PM PT (Clinic and Insurer Focus) 
  • 3:15 PM - 4:05 PM PT (Policy Maker Focus)

Join Us!

Please join us — online or in person — for an inspiring discussion with patients, clinicians, insurers, researchers and policy makers!

REGISTER HERE

2025 Symposium Speakers

Learn more about the speakers presenting at the CBCRP Symposium this year!

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About the Symposium

We are a group of clinicians and researchers working together to learn about progress in fertility preservation among young breast cancer survivors in California. Our symposium aims to share evidence relevant to oncofertility care in California, summarize care gaps , and synthesize and disseminate policy recommendations to develop equitable care. The symposium features three sessions, each focusing on different constituencies: patients, clinics and health plans, and policymakers. Please feel free to attend any session of interest and join us at your convenience. Please refer to the agenda below for session times and details!

Agenda

Time

Session/Topic

Speaker

8:00 AM Breakfast/Social Hour

9:00 AM

9:10 AM

9:30 AM

Introduction to the Symposium and Overview of Oncofertility Care

SB 600: Wins and Compromises

Overview of Policy Implementation and Making Actionable Recommendations

Irene Su, MD, MSCE

Senator Portantino

Erika Crable, PhD, MPH

9:45 AM

Panel 1: Patient-level Barriers and Facilitators to Accessing Oncofertility Services 

  • What Matters to Patients?

  • Patients' Unmet Information Needs and Decisional Regret

  • Disparities in Fertility Preservation Access

 

 

Rhonda Bulwer

Catherine Benedict, PhD

Hazel Nichols, PhD 

10:10 AM Break
10:20 AM

Panel 1 Continued 

  • Accessing Fertility Insurance Benefits: A Patient Experience
  • Oocyte and Embryo Cryopreservation for Fertility Preservation Before and After Benefit Mandates
  • Access, Utilization, and Affordability of Fertility Preservation Services in RI
  • Patient-level Barriers to Accessing Insurance for FP: A Novel Insurance Navigation Toolkit

Rachel Waranowicz 

Beth Zhou, MD

 

May-Tal Sauerbrun, MD

Joyce Reineke, JD

11:05 AM

Small Group Discussion: Patient-level Barriers, Gaps in Knowledge, and Possible Solutions

Moderators: Sally Romero, PhD, MPH and Bonnie Kaiser, PhD, MPH

12:00 PM Lunch
12:45 PM Panel 2: Clinic- and Insurer-level Barriers and Facilitators to Access of Oncofertility Services 
  • Clinic-level Barriers and Facilitators
  • What Matters to Clinic Leaders and Decision-Makers
  • Clinic-based Financial Navigation
  • Patient-based Financial Navigation

 

Pamela Simon, MSN, CPNP, CPON

Paula Brady, MD

Shannon Taylor,

Helen Palomino, LCSW

1:20 PM

Break

 

1:30 PM

Panel 2: Continued

  • Insurer Experience
  • Insurer-level Barriers: What do Insurers Need?
  • Appealing Insurance Denials in California: A Patient Experience
  • Clinic- and Insurer-level Barriers and Proposed Solutions: A Novel Toolkit

Kara Marlowe

Sara McMenamin, PhD, MPH

Katie McKnight, MLA-EP

Irene Su, MD, MSCE

2:00 PM

Small Group Discussions: Feedback on Clinic- and Insurer-level Toolkit and Discussing Research Priorities

Moderators: Sally Romero, PhD, MPH and Bonnie Kaiser, PhD, MPH

3:00 PM

Break

 

3:15 PM

Panel 3: Policymaker-level Barriers and Facilitators to Access of Oncofertility Services

  • The Role and Tools of the Health Insurance Regulator
  • Disparities in Accessing Mandated Fertility Insurance Benefit: An Advocate Perspective
  • Disparities in Eligibility for SB 600
  • Patient Support from the Heartbeat Program: Impact of Mandates
  • Policy- and Regulator-level Barriers and Proposed Solutions: A Novel Toolkit

 

 

Kayte Fisher, JD

Darcie Green

 

Kelly Chacon, MD

Joy Lewin

Sara McMenamin, PhD, MPH 

4:05 PM

Small Group Discussions: Feedback on Policy- and Regulator-level Toolkit and Discussing Research Priorities

Moderators: Sally Romero, PhD, MPH and Bonnie Kaiser, PhD, MPH

5:00 PM

Closing Statements

Joyce Reineke, JD